this was a very helpful site. They give a paper to you when you first are diagnosed (CVD) and start IV treatment but it is overwhelming. So after several years of treatment...and live adjustments I feel ready to be a more informed patient. My nurse signed me up for IG Living and I found this site thru that. Thanks so much!
Thank you for your comments! I apologize for the delay, I did not receive a notification of your post. Another site to look at is www.ig-ns.org. I am doing a lot of work for them and we will have some patient scholarships available to attend the next meeting in September/October in Las Vegas. Let me know if you are interested.
I receive IgG infusions and to mitigate side effects, I take 10 mg of prednisone on the day of the infusion and then each day following, reduce the dose by two mg. This is very effective in reducing chills during the infusion and headache/backache in the next few days.
I am glad you have found premedication that works, especially for the post infusion headaches, which can be difficult to manage.
New to this treatment. I itch all the time. I had this problem before infusion. It is mild but my head, buttocks itch all most all the time, not when i'm sleeping. Any suggestions?
Thank you for being out there for us! I am so grateful to have discovered your website and magazine. I've been on IGG therapy since 2007 and have now learned how to medicate for my treatment in order to minimize side effects. I'll inform my doctor as well. You've just thrown me a lifeline!
Tom Schleis, MS, RPhPresident, SPS